Semel Health & Genomic Data Consent
Version: V1 Effective Date: September 26, 2026
This consent applies to health and genomic information that you voluntarily provide to Semel Health ("Semel"), operated by Semel, Inc.
Key Information
Semel allows you to voluntarily provide highly sensitive information about your health and genetics.
Before providing this information, please understand:
- health information may reveal highly sensitive information about you;
- genetic and genomic information is particularly sensitive and may potentially identify you;
- genetic information may reveal information relevant to your biological relatives;
- removing your name or other obvious identifiers does not guarantee that genetic information can never be re-identified;
- Semel may use computational tools, including artificial intelligence, to process information you provide;
- no computer system can guarantee absolute security; and
- providing this information is voluntary.
Information You May Provide
You may voluntarily provide Semel with information including:
- symptoms;
- diagnoses or suspected conditions;
- medical history;
- medications and supplements;
- treatment history;
- treatment responses;
- adverse effects;
- sexual and reproductive health information;
- neurological or psychological symptoms;
- laboratory tests;
- hormone tests;
- urine tests;
- medical records;
- diagnostic reports;
- genetic test results;
- genotype data;
- genetic variants;
- VCF files;
- whole-genome or whole-exome sequencing;
- BAM, CRAM, or other sequencing files; and
- information derived from these records.
You choose what information to provide, subject to information required to use particular Semel features.
Genetic and Genomic Information
Genetic and genomic information differs from many other forms of personal information.
Your genome is substantially unique to you.
Even if Semel removes your name, email address, and other obvious identifiers, it may be possible now or in the future for genetic information to be associated with you.
Genetic information may also reveal biological relationships and information potentially relevant to your relatives.
Semel therefore does not promise that genetic or genomic information can be made completely or permanently anonymous.
What You Authorize Semel to Do
By consenting, you authorize Semel to collect, receive, store, organize, secure, process, and analyze the health and genomic information that you voluntarily provide for purposes of providing and operating the Semel service.
This may include:
- storing uploaded information;
- extracting information from uploaded files;
- converting records into structured information;
- organizing medical and laboratory values;
- identifying genetic variants;
- processing genomic files;
- calculating derived values;
- creating patient-level data representations;
- displaying information back to you;
- providing requested Semel features;
- maintaining and improving the operation of the platform; and
- protecting the security and integrity of the service.
Artificial Intelligence and Computational Analysis
Semel may use software, statistical methods, machine learning, or artificial-intelligence systems to organize, structure, process, or analyze information you provide.
Third-party service providers may be used to provide technical or computational services to Semel.
Where third-party providers process sensitive information on Semel's behalf, Semel seeks to limit their access and use of the information to the services they provide and to use safeguards appropriate to the circumstances.
Computational and AI-generated outputs may be inaccurate, incomplete, or subject to interpretation.
They are not medical advice and should not be relied upon as a substitute for professional medical care.
Research
Creating an account, providing information, or accepting this Health & Genomic Data Consent does not by itself mean that you have agreed to participate in a Semel research study or authorized Semel to provide your identifiable or participant-level health or genomic information to outside researchers for research purposes.
Semel may offer optional research programs in the future.
Where additional consent or authorization is required for a research activity or disclosure, Semel will provide additional information and obtain the applicable consent or authorization before proceeding.
Sale and Advertising
Semel does not sell patient health or genomic information to advertisers or data brokers.
Semel does not use patient health or genomic information for targeted advertising.
Privacy and Security Risks
Health and genomic information is sensitive.
Although Semel uses safeguards designed to protect information, no online service, database, or electronic storage system can guarantee absolute security.
Potential risks include unauthorized access, disclosure, security incidents, or the possibility that information—particularly genomic information—could be associated with you.
You should consider these risks before providing sensitive information.
Storage and Privacy
Your information will be handled according to the Semel Health Terms of Service & Privacy Policy and applicable law.
Withdrawal and Deletion
You may stop providing additional information at any time.
You may withdraw applicable consent for future processing or request deletion of eligible information by contacting:
cdmanya@semellabs.com
We will process applicable withdrawal and deletion requests in accordance with applicable law.
Withdrawal does not necessarily require deletion of limited information that must or may reasonably be retained for purposes such as:
- legal compliance;
- security;
- fraud prevention;
- resolving disputes; or
- documenting your consent and subsequent withdrawal.
Information stored in backups may remain for a limited period until those backups are overwritten or deleted through ordinary retention processes.
Voluntary Consent
Providing health and genomic information to Semel is voluntary.
If you do not consent, you should not upload health or genomic information to Semel.
Consent
Before providing health or genomic information to Semel, please confirm:
Checking your consent status…
Providing health and genomic information is voluntary. Return home without consenting.